I’m haunted by the image of my tiny baby boy ‘on the brink of death’ with RSV – every parent MUST know the signs

MUM-of-three Lydia Johnson experienced in no way read of respiratory syncytial virus (RSV) till her infant boy was battling for his life with it.

Now, she would like each individual dad or mum to be mindful of the very-contagious bug and its signs or symptoms right before it is as well late.

Baby Leo in hospital after contracting RSV


Little one Leo in medical center following contracting RSVCredit rating: Bronchial asthma + Lung / Lydia Johnson
The youngster after making a recovery


The youngster right after building a restorationCredit score: Asthma + Lung / Lydia Johnson

The 29-yr-previous said: “I had no plan that RSV could be so dangerous or cause long lasting damage.  

“I’ll under no circumstances fail to remember the image of my son as a small child in healthcare facility hooked up to machines.

“I might urge any guardian to act promptly if their little one shows any indicators of trouble respiratory.

“It may well properly help save their daily life.”

When Lydia gave birth to minor Leo, she in no way envisaged he’d have any important health troubles.

Equally her being pregnant and the shipping had run efficiently, and she couldn’t wait to introduce her bundle of joy to his sisters.

But weeks afterwards, Leo was rushed to healthcare facility. And inside hrs, he was battling to survive.

Thankfully he pulled as a result of, but he is still struggling the outcomes of it now, six months on.

RSV is prevalent in infants and small children below the age of two.

In most cases, small children can be properly cared for at residence. But about a few in every single 100 have to have healthcare facility procedure to assistance them breathe and feed, as RSV can bring about an infection of the scaled-down airways named bronchiolitis.

Unfortunately, Leo was just one of the unfortunate ones. 

He was just six months old when Lydia, currently mom to Sofia, 4, and a person-yr-previous Alyssia, was breastfeeding at residence in Telford, Shropshire, just one night when she found that a thing did not feel appropriate. 

“He was sucking in at his ribs, as although he was really shorter of breath,” Lydia stated.

“I unzipped his swaddle and could see he was truly having difficulties to breathe in.

“Mainly because I currently had young children, I knew that any respiratory issues should be checked out in a baby, so I advised my husband Clayton to keep dwelling with the ladies although I drove Leo to the healthcare facility.”

A&E was only five minutes absent, but in that time, Leo’s ailment deteriorated speedily – to the place that he became floppy and turned blue.

“He was completely unresponsive, and I ran within with him in my arms and medics arrived hurrying around,” Lydia claimed.

“I experienced no plan what was likely on as he’d seemed wonderful all working day with no symptoms of ailment at all.”

Medical professionals uncovered that Leo’s oxygen saturation stages have been amazingly lower, so they place him on an oxygen equipment.  

“But even that wasn’t enough,” his mum claimed.

“His pores and skin was turning into truly mottled and I was in shock observing the medical doctors have a tendency to him.

“I could not believe that just fifty percent an hour prior to I’d been putting the girls to mattress and feeding Leo and now, we have been in clinic, and he could not breathe.”

I had no notion that RSV could be so risky.

Lydia Johnson

Clayton rushed to be by her aspect at the medical center when his mother-in-legislation viewed the women.

Health professionals told the couple that their boy had bronchiolitis, introducing that it was widespread in babies and Leo would likely get a minor even worse before he got far better – but with oxygen, he really should be great. 

Two times later on, Leo was feeding normally again and respiration unaided, so they were authorized to get him property and instructed to return if there were being any concerns.  

“They’d specified him a upper body X-ray which had arrive back again very clear, so we have been self-confident he’d be wonderful when we took him property that morning,” Lydia claimed.

By evening meal time the exact working day nonetheless, Lydia sensed a thing was not correct with Leo and she experienced a “gut feeling” he necessary health-related care.

But right before they reached the children’s ward, Leo had stopped respiration wholly and was floppy and unresponsive.

Staff members once again rushed about, putting Leo on oxygen, and fitting him with a feeding tube.  

A different X-ray disclosed Leo’s lungs ended up exceptionally congested and he was taken to the superior-dependency unit.

Determined to know if he would pull via, Lydia requested her nurse friend if he would be Ok – and to be trustworthy.

“She informed me he was the sickest baby they experienced there and it was then that the worry established in and I realised I could get rid of him,” she added.

Lydia hadn’t slept for 3 days but the shock and adrenaline kept her awake by her son’s bedside.

Right away, he took a even further flip. Checks confirmed Leo had RSV and he was set on a constant beneficial airway strain (CPAP) equipment.

“He just retained getting even worse and even worse and I felt so helpless,” Lydia said.

“Then, at all-around 6am, he manufactured this weird gasping sound and stopped respiratory yet again and the nurse pulled the unexpected emergency cord.

“All I could see had been very small, pale grey legs sticking out from beneath the doctors’ and nurse’s arms as they attempted desperately to help save him.

“I ran down the corridor, hysterical. I couldn’t check out.”


Lydia named her spouse, scarcely ready to speak as she croaked: “I think he’s died.”

Clayton arrived straight to the medical center, together with other household users, and they all sobbed.

Lydia explained: “Clayton is a big, solid bloke and I experienced by no means witnessed him split down the way he did that early morning. We have been both traumatised. 

“When they took us as a result of to see Leo, he was unrecognisable.

“He had this substantial breathing mask around his little encounter and was genuinely swollen. I was determined to hold him.

“A person of the medical professionals explained to us they had done all they could – they’d supplied Leo oxygen and were feeding him as a result of a tube.”

Leo was also place on antibiotics via an intravenous drip in case he’d also developed pneumonia or pleurisy, and for 3 times things remained contact and go.

Lydia slept beside him on a camp bed, singing and talking to him day-to-day and begging him to make it. Then, miraculously, he did.  

To see his minor confront and have him awake again was incredible.

Lydia Johnson

Steadily, he was taken off the CPAP device and place back again on oxygen right until, by the 3rd day, he could breathe on his personal.

“To see his tiny confront and have him awake again was amazing,” Lydia claimed.

“I stared at him for hrs on conclusion just to take in his features.”

After feeding on his very own for 24 hours, Leo was allowed dwelling after once again and fortunately, has never fallen as ill yet again.

But the virus has remaining him with ongoing wellness problems.

He has scarred lungs, a “lasting wheeze”, and any moderate virus he picks up has the likely to turn into bronchiolitis again.

But total, Leo, who is now six months aged, is a “dazzling and pleased boy”.

“We do not know what the potential retains for Leo and his lung well being, but I’m just so glad I dependable my instincts and took him to healthcare facility straight away when I found he was getting respiration troubles,” Lydia mentioned.

“I had no strategy that RSV could be so risky or trigger long lasting hurt.  

“I’ll never forget about the image of Leo as a little newborn in medical center hooked up to machines and would urge any parent to act speedily if their boy or girl displays any signals of trouble respiratory. It may perhaps very well help save their everyday living.”

Lydia said: 'I was in shock'


Lydia stated: ‘I was in shock’Credit rating: Bronchial asthma + Lung / Lydia Johnson
Leo displayed mottled skin and breathing difficulties


Leo shown mottled skin and breathing challengesCredit history: Asthma + Lung / Lydia Johnson

What is RSV and what are the indications?

RESPIRATORY syncytial virus (RSV) is a contagious bug infects the lungs and breathing passages.

It is most popular in babies and really youthful kids.

Signs include:

  • Issue respiratory
  • Issues feeding
  • A blocked or runny nose
  • Wheezing
  • A dry, raspy cough
  • Extraordinary tiredness
  • A significant temperature
  • The skin, tongue or lips turn blue
  • Floppiness or unresponsiveness

The UKHSA implies far more than 80 for each cent of small children will have had the virus by their 2nd birthday.

Most can be safely and securely seemed after at residence and go on to make a whole restoration.

However, some babies and children are at better danger of building critical bronchiolitis, like untimely infants, toddlers with existing lung or heart problems, babies with inadequately formulated immune programs, and kids with Down’s syndrome.  

Supply: Asthma + Lung Uk

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