Our little boy is battling dementia aged 3 – it’s devastating but we are making most of time he has left

A BOY is battling dementia aged just three.

Joey Walton has lost all the techniques he experienced formulated, these types of as the skill to walk and communicate.

Katie Morley's son Joey has metachromatic leukodystrophy


Katie Morley’s son Joey has metachromatic leukodystrophyCredit rating: Glen Minikin
Joey was initially diagnosed around 18-months-old


Joey was at first diagnosed all over 18-months-oldCredit: Glen Minikin

Mum Katie mentioned: “When he out of the blue stopped creating progress, I contacted the overall health customer.

“In the pursuing two months, his legs started out to bend and his toes began to transform outwards.

“When we observed the physiotherapist, Joey experienced shed the ability to sit up as well, so she understood one thing was improper.”

Joey was identified with metachromatic leukodystrophy (MLD) — a rare genetic problem that leads to fatty substances to establish up in the mind, spinal twine, nerves and organs.

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In flip it causes the reduction of physical and mental competencies — and, regrettably, Joey is unlikely to achieve age 7.

Katie, 35, of Wakefield, West Yorks, was “devastated” by the analysis and explained Joey has “had a big decline in the past 12 months”.

But she and Joey’s dad Liam Roebuck are hoping to make the most of the time their son has still left.

She added: “We’ve been on day excursions out and he specifically beloved observing the Gruffalo in Blackpool.”

She is also supporting a marketing campaign calling for MLD screening at beginning.

She mentioned: “If it is picked up early, cure is accessible. It’s way too late for Joey, but if we can cease extra households heading by way of this agony, it’s value it.”

Katie and Joey’s dad Liam are trying to make the most of the time their son has left


Katie and Joey’s father Liam are making an attempt to make the most of the time their son has remainingCredit rating: Glen Minikin

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